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Wed, Apr. 9th, 2008, 11:59 am
We need drugs

http://aprilwitch.livejournal.com/309822.html
http://doctor-liza.livejournal.com/214409.html
http://moniava.livejournal.com/747041.html

These are the tree stories told by three independent people. The stories that they have been witnessing are outraging, awkward, and terrifying. They are told about children. Our children. And about grown up people. I almost every family which encountered oncologic diseases.

It happened so, that when Federal Committee for Drug Control was established, they started to fight not with the drug-addicted people but with doctors and their patients, and also with veterinary doctors. Since then it became impossible to obtain drugs for rapid pain relief in many cases. There are numerous stories about people who went home from hospitals for weekends whereas the procedure of obtaining drugs legally implies several stages which can take couple days altogether. We have encountered such situations. And my colleagues have also been in such situations. I will not tell stories about children, I will just describe my experience with getting the drugs for my wife's mother.

In addition, there are strict limits what you can do with drugs. For example, an onologist who signs the prescription can increase the dosage or decrease it. But he is unable to increase the dosage if it has been decreased before that. It means that in some cases the patients have to administer stronger drugs or drugs in larger quantities than they need. Because there is no simple legal procedure which the doctor can use to find a drug and its dosage that MATCHES the patient. Actually, as always in our country, there is a legal procedure which requires several other doctors and the head of clinic to approve these new prescriptions. But in many cases it simply does not work. Because the people who are to approve, do not know the patient, so they just DO NOT CARE what will happen to him. And in many cases they refuse to approve the primary oncologist's suggestions.

Moreover, the procedure of obtaining drugs is weird. Even if you have a prescription from a research center like Blokhin's, Gerzcen's, or the center in Obninsk, which specialize on oncology, you HAVE to go to your local oncology clinic to see the specialist there. And he has to write a prescription (officially only after seeing the patient himself, and in some cases they refuse to see patients which cannot come themselves). With this prescription you should go the see your local physician, which, in its turn, should see the patient himself and, in collaboration with a couple of officials in this local clinics, to sign special blanks. The number of this blanks is limited to the number of the current patients of this particular clinics +1 or two. That means that if any of doctors makes a mistake while writing the prescription, or if there are several newcomers, the clinics authorities have to apply for increased number of blanks to a Moscow Committee. And that takes time.
P.S.  I also forgot to tell that if you got the final special blank but the silly technician put the wrong stamp on it, of if the stamp is right but not CLEAR enough, you have to start the procedure once again.
P.P.S. You have to take this special blank every 10 days, and a prescription from a local oncologist once a month. The second part is only time-consuming. But the first part in quite challenging because of New Year and other holidays. Before the last New Year, the regulations for this period were issued by Moscow bureaucrats at the very last moment.
P.P.P.S. Only certain relatives can obtain all these documents if the patient cannot go to the doctor and to the special pharmacy himself. even if I am legally married to Olya, I cannot have official right to get drugs for her mother. Only Olya or her father can, but neither of them were able to do that during the last year because strict roles at Olya's father's work and because of small Matvey.

Taking together, apart from the useless local oncologist if he is not your primary doctor helping you to struggle the disease, there should be much luck in seeing all the necessary specialists when you need them. And in many cases, when the patient  leaves the hospital, he needs the drugs as soon as possible. And the AWFUL SYSTEM requires at least one full day, if not two or three days.


So, the QUESTION is: HOW MANY SUCH CASES SHOULD APPEAR BEFORE PEOPLE START DEMANDING TO CHANGE THE OFFICIAL ROLES? HOW MANY PATIENTS WILL DIE SUFFERING OF SEVERE PAINS BEFORE OUTROAR AGAINST BUREAUCRATS HUMILIATING THEIR OWN PEERS GROWS UP?

Wed, Apr. 9th, 2008 05:12 pm (UTC)
[info]u_niq

And another question: What do we have to do to improve the situation? I do not think that if everyone will independently struggle just about his own case, the number of such awkward cases will decrease

Wed, Apr. 9th, 2008 06:38 pm (UTC)
[info]second_hour

This is not an easy matter to arrange. Basically we can post the story wherever we can. Then there is a possibility to make Public Chamber interested with the subject and they have enough resources to make it politically sound. Moreover there are human rights watching organizations still remained in Russia, and they can be googled out and made active.

But the real thing is that the legislative Moloch is extremely awkward, and the problem is definitely in Laws... Doctor Liza was absolutely right when she said that both in Russia and in Ukraine we do not even have accessible effective anesthetics, the problem is really complicated. When ordinary students can easily tell you how to take a narco-trip just after spending 10$ in the drug store, there is a need for the Law...

Wed, Apr. 9th, 2008 07:39 pm (UTC)
[info]u_niq

Dima, I can read Russian, I just cannot write in this language. ;)

In Russia there are so many silly laws regulating distribution of drugs and their "precursors", that altogether they have nothing with common sense. HCl, H2SO4 and KMnO4 are prohibited as such precursors, some solvents such as acetone (if I'm not mistaken are also prohibited). According to this logic, they should also prohibit all cars using H2SO4 in their batteries.

Students will always be able to synthesize drugs from any available components. Such cases occurred in the past, and they will occur in future. No prohibitions will work on this. A person, who wishes to break a law and to synthesize drug won't stop when he finds that it's a bit difficult to get acetone or any acid.

And also there is a choice for a society. They should chose what is better for them: to make the rules more strict to avoid drug distributon but to allow patients die suffering, or to make more mild rule at least for medical drugs and to stop such horrifying accidents

Thu, Apr. 10th, 2008 05:01 am (UTC)
[info]second_hour

I recognized your English as a genius way to 1. Make it known for English-speaking people, it will be indexed in all web-browsing engines. 2. Cut-off stupid and demagogic blog-folks altogether with probable federal service for Internet supervision ;)

Thu, Apr. 10th, 2008 01:01 pm (UTC)
[info]u_niq

Неа, это у меня на рабочем компе не установлен русификатор

Wed, Apr. 9th, 2008 08:01 pm (UTC)
[info]potar1

Я там отметилась в комментах. И открыла свой пост годовалой давности.

Thu, Apr. 10th, 2008 07:09 am (UTC)
[info]velta_1

Догадались? Я как раз хотла Вас попросить его открыть. Если уже - можно я его к своему вчерашнему кросс-посту добавлю? А то там несколько тысяч комментов - утонет. А оно полезно было бы...

Thu, Apr. 10th, 2008 12:20 pm (UTC)
[info]potar1

Да.

Thu, Apr. 10th, 2008 12:30 pm (UTC)
[info]velta_1: Я не знаю

по какому времени настроен ЖЖ, похоже не по нашему и не по вашему. Но из предварительных расчетов складывается, что Ваше "Да" вы произнесли где-то часов в 6 утра???

Thu, Apr. 10th, 2008 12:45 pm (UTC)
[info]potar1: Re: Я не знаю

:)))))
Не, около 8 :)))

Wed, Apr. 9th, 2008 08:10 pm (UTC)
[info]lt_kliner

Или самим подваривать лекарства, на свой же страх и риск...
(ловко ты по-английски!)

Wed, Apr. 9th, 2008 09:50 pm (UTC)
[info]lt_kliner

Прочитал. Идиотская российская система - во всём организована так, что человеку проще отказаться от каких-либо попыток, чем ходить, выбивать, бороться (слова-то какие!).
Добавлю не в тему, но... я тут пару раз заходил в ОВИР: никогда больше не поеду за границу, буду жить на даче... уйду в монастырь... А, может, они и заточены на такую реакцию?

Thu, Apr. 10th, 2008 09:10 am (UTC)
(Anonymous): Надо сказать, оно и при совке так работало...

У меня бабушка умерла еще в 1984 году. От рака. Но курировала ее районный терапевт, там ничего нельзя было сделать, бабушке был 91 год. Но когда она скончалась, по счастью, практически без болей - это терапевтша (очень хорошая была тетка) прямо перекрестилась: Я, говорит, два месяца каждый день пишу заявку на онколога на дом. И два месяца он не идет. Я со дня на день боялась, что начнутся боли - а я ничего не могу сделать!

Thu, Apr. 10th, 2008 09:13 am (UTC)
[info]velta_1: Прошу прощения -

я последний аноним.

Офтопик - каждый раз, когда на моем компе посидит проф. Лаврик О.И. - меня почему-то вышибает из всех регистраций! Аура у нее, что ль, такая?

Tue, Jun. 24th, 2008 10:18 am (UTC)
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Sat, May. 2nd, 2009 02:23 am (UTC)
(Anonymous): Help for downloading for free

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